"The contract said you will need to promote an inclusive
lifestyle, independence and choice, but no suggestions on how to do
or what this looked like for Jennifer".
Jennifer (name changed) is described by those who know her well
to be a well organised and confident lady who enjoys spending time
painting her nails, putting her make up on and takes great pride in
her appearance. She lives with 2 other people in a supported living
home.
Jennifer's support plan file was bursting with paper and a
wealth of information from a whole wealth of people over the years
and professionals, giving their recommendation on what this could
look like for Jennifer. At best, this information is great in
creating some ideas on how to boost Jennifer's wellbeing and give
the support team some ideas to try.
However every time a new recommendation came forward the staff
team had been trying and trying their best to implement the advice.
For Jennifer there seemed to be more unsuccessful events than
successful ones, to the point that it felt that opportunities were
becoming more and more limited, Jennifer seemed to be getting more
and more unsettled and she was starting to get a negative
reputation within her local community.
It was clear to the people in Jennifer's life that something had
to change and fast.
By doing a review of what's working and not
working from different people's perspectives, we learnt
that there had been too much emphasis on the paper work and not on
improving Jennifer's life and that we had not asked professionals
enough why and how questions, we also needed to have a greater
understanding on what is important to Jennifer and what works best
for her.
What we did learn is that Jennifer is a fantastic communicator,
even though she does not use words, we learnt that pictures work
really well for her. By using the communication
charts we were not just able to learn how Jennifer
communicates, but also how we should communicate with Jennifer. The
team started to work with Jennifer to gather a collection of
pictures to help develop her communication, from local places,
things she may like to do, food choices, housekeeping through to
personal care. Putting Jennifer in the driving seat on making
choices and decisions about her life.
We also learnt that being organised and planning a day ahead is
really important to her. We learnt that Jennifer is very skilled at
sorting things out and organising herself, but needed to know the
sequence of events; she could not always remember them all or would
get muddled, making her feel anxious and cross.
We introduced a tomorrow board to help Jennifer to make choices
about how she wants to spend her day, she then organises the
sequence of events by using pictures.
The team also spent time with Jennifer to develop her
one page profile; this has formed the basis of her
support plan, on what is important to Jennifer and how best to
support her. We know that she loves handbags and shoes, having her
hair done, real attention to detail to how her nails and make up is
applied. This has been the starting point for developing great
community connections. She is a regular now a regular visitor at
her local health centre and hairdressers.
When out and about, she has uses a talking key-ring, so she can
let people know where she wants to go and what the next steps
are.
Jennifer's life is looking very different now, by knowing that
she is involved in making decisions in her life, she has developed
trust with the people around her, she is making her own choices,
going to places she likes to be, gained new independence and has
made new friends.
The team have also learnt that it is okay to ask professionals
questions to ensure that they get greater clarity on what is
expected. The person centred thinking tools have not only enabled
the team to sort out what inclusion, independence and choice looks
like for Jennifer, but they are much clearer about how Jennifer
communicates and what good support for Jennifer looks like, seeing
the difference that this has made has been truly inspiring.