In training we frequently mention that the work we teach is not
about disability, rather it can work for anyone. A few weeks
ago I was challenged to figure out exactly what that means. My
dad asked me to give a 'speech' at his Lions Club (local community
service club) dinner meeting, and thinking 'how hard can it be?' I
agreed. I had half an hour to present to a group of people who, to
the best of my knowledge, had no experience of the human service
sector. In the dining room of the local pub there was no space
for a data projector, so no power point presentation. I was given
only very broad instructions on what to talk about ("just tell them
what you do"), and to add to the pressure, my audience was
comprised of my parents' peers, many of whom I have known my entire
life.
So I took my trusty pin board and a couple of posters, and
handed out copies of a range of one page profiles. I talked a
bit about the origins of our work, historical context of services
and the need for person centred approaches, and some of the ways
person centred thinking and planning are currently being applied.
From there I asked people to think about what is important to them
now & into the future, and to reflect on whether or not their
loved ones would know the fine details of what they want to be
present or absent in their day to day lives.
In response to a number of questions, many people confessed that
they have told their children that they never want to be put in a
nursing home, and that if they live to become confused, or
physically dependant on others they want someone to "just shoot
them." The general consensus was that their loved ones were
unlikely to shoot them, and that a nursing home could quite
possibly end up being part of their future. These grim
reflections were discussed with a lot of laughter, and culminated
in discussion about exactly what family members may need to know in
order to ensure they continue to have what's important to them
regardless of what their future may hold.
At the end of the presentation, people asked insightful
questions like "how can you find out what's important to someone if
they already have quite advanced dementia and can no longer tell
you?" As I packed up, almost everyone approached me and shared how
they related to what I had been saying - caring for elderly
relatives, siblings with significant health issues, children &
in-laws with acquired disabilities, or just reflecting on the
realities of aging and how they saw their futures.
It felt like such a privilege to present to a group of ordinary
people completely outside of the service sector, and to witness
such different sorts of conversations emerging amongst the
group. As trainers working in services, there is so much that
we don't have to say or explain, and there is so much that we can
presume. We can make statements like, 'this work is just
about people' without really stopping to think about what person
centred thinking & approaches may mean to the average person in
our community. I feel deeply appreciative of having had the
opportunity to stop and reflect on this, and put to put my thoughts
into words. I recommend that any trainers or advocates of person
centred approaches seize any similar opportunities that may come
their way.