Earlier this month, Prime Minister David Cameron launched a new
'friends and family' test, to be introduced into every NHS hospital
in England from April. Upon leaving hospital, patients will
be asked whether they would recommend the service they have
received to a loved one. This measure is part of a broad
governmental drive to raise standards of patient care, which I
fully support. But I wish it went further.
Last April my own mother was hospitalised after a road traffic
accident and her experience of care was not a positive one. From
being treated like 'the broken leg in the far bed', to having the
wrong name on her bed - Caroline not Carolyn, she would not
recommend the service she received at hospital.
Mum's experience may not be unusual. It made me think
about how a patient's experience could be different: could be
patient-centred. What if hospital care was delivered as if patients
mattered as people? What if we cared enough to ask
patients about their expectations for their hospital stay
before they even arrived, not just after they
have left, as in the 'friends and family' test.
- What if you only told your story once and every time a nurse or
professional asked you more questions, they were building on what
you had already told them?
- What if you were known as a person and people knew a little
about what mattered to you as an individual?
- What if you knew a little about the nurses and staff, so that
they felt like people as well?
- What if you knew who your 'team' was and when they were coming
each day, as well as a nurse who was responsible for making sure
you were comfortable and had as good a day as possible?
- What if you had an opportunity to tell people safely how your
hospital experience was going for you, whilst there was still an
opportunity to make it better (rather than a questionnaire after
you have left?)
- What if night staff saw their role as helping you sleep
well?
- What if you were part of the planning and decision-making about
when you were transferred or were discharged home?
- What if you were contacted after you arrived home to see how
you were getting on?
We are exploring these and other questions with the senior
management team, nurses and health professionals at a hospital in
Bispham, Blackpool. Here, we have developed a process, our vision
of what a truly patient-centred experience could look like, based
on my mum's experience and how it could have been different.
We'll be implementing and refining this process over the next few
months.
Here is a graphic of how we think my mum's experience could have
been different.

The assessor, would have gone to meet her in hospital and
started to develop a patient-centred profile about what is
important to mum and how to support her at Bispham. This would
include information about how mum usually sleeps, her hobbies,
interests and family. During that conversation, the assessor would
have built on the notes she read about mum and talked about what
the unit could offer her - also giving her a chance to discuss her
own expectations of the unit. They would have decided together the
best day and time of day for mum to arrive. The assessor would then
check the information that mum was happy to have shared on a
profile, which would be posted above her bed, for staff to
read.
When my mother arrived, the receptionist would know she was due
and would have read her one-page patient-centred profile. She
would welcome mum by name (her right name!) and perhaps ask whether
her daughters would be visiting that night (or another question to
illustrate that she was known as a person). This simple
question would reassure my mother that the hospital knew all about
her. As mum was taken to her bed, she would have seen a
display of the staff team, each with a photo, and their role, as
well as a little bit of personal information about them.
Within an hour, mum's named nurse would have met her and
completed her admission. It would have been clear to mum that the
nurse knew all the information she had previously told the
assessor, as the conversation built on that. Mum's patient-centred
one-page profile would be on the notice-board behind her bed, large
enough for people to read.
Mum's named nurse would introduce her to her 'team' by showing
her the mini profiles of the physiotherapist who would be working
with her, and any other professionals, and a timetable of when
these sessions were likely to be. The nurse and mum would
then decide the best visiting times, personalising them depending
upon mum's energy levels and what was possible for her family and
friends. The nurse would tell her about the unit's
volunteers, asking whether she'd like to be introduced to someone
with similar interests, then she would take her on a tour of the
unit.
Each day, the nurse responsible for mum's care that day, would
ask her what a good day would look like for her. Mum might say, it
would be walking an extra three steps unaided, or writing a letter,
or having a good game of scrabble. The nurse would write this on
mum's notice-board and at the end of the day the night nurse would
ask mum how that had gone.
The night nurse would be responsible for helping mum have the
best night's sleep possible - this is not just about sleeping
tablets, but a range of ways to help patients sleep well, including
individual soothing music and eye masks.
Most patients stay at Bispham for between 10 and 14 days. After
five days, the nurse manager or a volunteer would talk to mum
privately and ask her about two things that were going well, two
things that could be better and two things that she would like to
see in the hospital in the future. This information would both be
used to improve mums' stay immediately and to give feedback
directly to staff.
Mum's progress would be discussed with her and the therapists
involved in her care, around her bed, rather than separately in
multidisciplinary meetings, reflecting the 'nothing about me
without me' philosophy of the unit. Finally, when it came to
thinking about discharge, mum would be asked how and when she
wanted to leave. Her updated profile would be sent to the health
professionals who she would be involved with after she left
hospital. A week later, she would get a call from the hospital to
check how she was doing at home.
We've already made a start at the Bispham unit. Profiles
of the nurses and health professionals are up on the walls, so new
patients can learn about their team and understand more about them
as people. Staff have started to ask each patient what is
working/not working and what is important in the future.
The Bispham team is determined to implement this entire
vision of first class patient-centred care.
To those who say that patient care at this level is impossible,
and unaffordable, we will keep you posted on how we are doing
through our new dedicated blog http://personalisinghealth.com.