In December I blogged about the power of circles,
and offered some suggestions about how we could extend the breadth
of circles across the country.
Caroline Tomlinson is one of the pioneers of circles. You may
have heard how her son Joe, has a circle of support, and was the
first personal budget through the early In Control pilots. Caroline
is my guest blogger, and she has led the development of 'Our
Futures' in Wigan, who are working to extend the ways that people
can have a circle of support.
"The circles concept can play a huge part in getting a good
life for individuals who need support and their families, but what
about those people who are not as well connected or who don't have
any friends or family? This was a question I thought long and hard
about in my quest to get ordinary people a good life. Taking the
PLAN institute model in Canada, we adapted the process to work in
England and developed the 'Our Futures' model initially in Wigan,
which is now rolling out across the country.
The model is simple, for each circle of support we have a
facilitator who is paid for by the family or the individual
themselves. Why paid? Well it is simple, if you pay someone to do a
job you expect a certain quality and if you don't like what you
get, you can replace them. Each facilitator works with 1 circle.
This is to ensure each facilitator can concentrate on developing a
circle unique and meaningful to the individual and their
family.
To recruit families and facilitators, we needed a local host
organisation who was trusted by families. The obvious choice was
Embrace Wigan and Leigh who had been working in the locality for
many years. Their role was to find local people who wanted a circle
of support, to train the facilitators, co-ordinate the process and
provide ongoing mentoring and support.
Encouraging some early adopters took a lot of energy and
encouragement, but once one or two families got going with circles,
word got out. In fact we had recruited several families and didn't
have enough facilitators, so effort needed to be put in to
recruiting local people to be facilitators. This process was helped
by working with local providers of services who had a good person
centred reputation and some skilled staff who wanted to be
facilitators. We developed a 'trade off', where staff could be
released to be trained as facilitators for local people who didn't
receive support from their organisation and in return, other local
facilitators would facilitate a circle for people who they
supported.
The facilitator training was given, which emphasised people
living a good life through positive friendships and relationships.
We based the training on a model of hospitality and concentrated on
developing a circle, person centred tools, effective mediation
skills and keeping a circle alive and productive. As each circle
meeting was held, the facilitators were brought together to be
supported and mentored, this provided excellent peer support and
enabled the co-ordinator to keep track of what was working and what
was not working.
The outcome has been that 30 circles are now up and running
in Wigan and some of them have been going for several years.
Individuals and families have described the process as initially
scary, but have been able to address the issue of who will be there
for my family member when something happens to me? They also
describe how the present has changed, how they are exploring many
ways to give their relative a good life that they would have never
have done.
Here are some of the stories so far:-
Pauls Pondering Posse
Paul has a circle that has been set up in the last few
months, so that his mum and dad and their non disabled daughter,
could have peace of mind if anything should happen to mum and dad.
They had wanted a circle for years but didn't think it would be
possible to do. The big issue for them was who would you ask and
would people be interested. The facilitator, Kevin, really made
this work and reassured them throughout the process. What they
never anticipated was that when they set up the circle, there would
be so many on-going issues that they were struggling to deal with;
the circle has really helped on a practical and emotional level and
is making the whole family feel much more confident about the
future.
Jenny's Jolly Jaunts
A circle has been set up for Jenny, a young lady with very
complex needs. She's in her final year of college within a special
school setting. Both mum and dad were very anxious about their
daughter's future and hadn't got confidence in a social worker
giving the family the best options for their daughter. Where she
lives, transition social workers still only get involved with the
individual six months before they leave college at 19. After just
two circle meetings and lots of tasks completed by the circle
members, this young lady has more options available now than she
can fit into a week. Ironically, most of the activities are part of
universal services, which is fantastic considering this young
lady's complex disability. We held a circle meeting last night and
mum and dad said they are quite overwhelmed by what the circle has
achieved in such a short space of time, and they couldn't measure
just how much pressure the circle has taken off the
family.
How long do we wait for the
Invite?
A single parent heard a presentation from Our Futures and
took the information away with her. She then got in contact with us
four months later. She wanted a circle for both her son and
daughter because mum has started to have concerns regarding the
future and if anything should happen to her. Both her son and
daughter currently live at home and have no plans for moving out in
the future. Both her son and daughter have a learning disability,
but if anything should happen to mum they would be able to live
together without support except for someone popping in now and
again. What mum's main concern is, that if anything should happen
to her son and daughter they wouldn't financially be able to
continue living in their current home. She feels that if they need
to move they would be left vulnerable and could be open to
financial abuse. At first she was struggling to think of anyone who
would want to sit on a circle. However, after spending a bit of
time with the coordinator she came up with 5 names. We have held
one circle meeting to date. One circle member said we have been
waiting to be invited in because we didn't know how to approach
you. Mum said that she didn't ask in case people thought she
couldn't cope. Again, at the circle meeting, day to day issues came
up and mum had tried to sort some of the issues out but was
struggling. Although it was the first circle meeting, 3 members
have taken on tasks to help the family move forward. These issues
have all now been addressed.
What about people whose family are not
interested?
Carly has just turned 22 years old and has had a life of
shared care between the state and her family. Carly has a moderate
learning disability and went to a special school, but her support
needs were heightened by her chaotic family life. Carly spent much
of her childhood between council respite units and living at home.
When Carly turned 18 years old, her family were persecuted by a
firebomb at their home and this separated the family. The only
option was for Carly to live in a hostel with 36 other people who
all were significantly older than her. Carly was extremely unhappy,
she didn't know many people and her family no longer wanted contact
with her. Having known Carly for several years, to get out of the
crisis situation we felt the best thing would be set to up the
circle, even though this would be our first, it was worth a try.
The circle was made up of several people who had known Carly in
school and different places she went to. In the first instance the
circle managed to secure some direct payments and manage the
payments so she could have at least have some quality time with
personal assistants outside of the hostel. Eventually the circle
managed to support her to move into her own home and have been
critical in terms of ensuring she can access and contribute to her
community. The circle is as strong as ever 4 years down the line
and has supported Carly with the struggles of where she lives and
who she lives with. The circle are helping Carly look for an
alternative place to live in the future, but are supporting her to
get it right. They assist her with making choices on how to spend
her money, getting her staff team to understand her and have
recently enabled her to meet back up with her Mum again. By no
means is Carly's life sorted but the circle has her vision at the
heart of everything they do.
What happens when I'm gone?
Brendan is in his 40's and found himself in residential
care. His Mum had died years before and his Dad had just died
suddenly. Brendan wanted a circle but the people paid to be in his
life resisted like anything. To cut a long story short the circle
has finally got going after negotiating long and hard with the paid
staff, and is working on a plan for Brendan to live with someone
out of the residential care unit that he gets on with really well.
They are looking for property near where he used to live and hope
to be in their own home for Christmas.
What happens when I'm long gone?
Bernard is 62 and his family have either died or live
abroad. He has lived on his own for years and has been supported by
a provider who recognised he didn't have many people in his life,
just paid support. A circle started to evolve as the facilitator
recognised some of Bernard's interests. Bernard was an avid World
War fan and so the facilitator has got a local group of veterans
involved, some folk from the local supermarket distribution centre
and other local people. The circle are in the early stages of
building a relationship with Bernard, but already he is chatting
more, is certainly more sparky and a glint seems to have come into
his eye.
So to conclude
The circles have in some instances moved mountains, given
people a feeling of security or have simply cheered people up. It
is early days, but what we are seeing is a very real concept that
whatever shape or form the circle takes, it is providing something
which has never existed before.
The people at the heart of the circles and their family and
friends are feeling much safer and secure. They say they can't
believe how such a simple concept seems to be so effective.
The effectiveness we believe is that it is owned, loved and cared
for by families. We don't profess it is the right solution for
everyone nor do we think it should become a standardised practice.
Our Futures is a concept and idea for people to think about and
certainly is not the only way people can develop a circle of
support, however it provides the infrastructure for offering people
peace of mind should they wish to take it."
We are continuing the discussion about circles with Max Neill
through a paper about circles that will be out early summer, and
perhaps a North West event to! In the meantime, if you want more
information about the work that Caroline is doing contact:-
Caroline Tomlinson
07947 608 915
Caroline_tomlinson@hotmail.com