One size can never fit all. While councils are adopting tools
and processes to personalise services, they must ensure that the
way they use those tools makes their services more personal where
it really counts - at the point people experience them. Good
quality plans, strategies and reconfigured services are all vitally
important, but if someone's immediate support worker isn't working
in a person-centred way, then high level strategies won't make much
difference to the person on the receiving end.
This is particularly true of people with dementia. Recently,
over 73 organisations committed to a Dementia Action Alliance that
will work towards transforming the quality of life of people living
with dementia in the UK.
http://www.dementiaaction.org.uk/downloads/file/1/national_dementia_declaration
Amongst their declarations was a commitment to delivering personal
choice and support that is designed around the person and that
helps them live the life they want and be part of a community.
A number of councils and residential care homes have started to
use person-centred thinking tools as a way of providing
individualised support to people with dementia.
Many of the approaches that feature in the book - like 'sorting
important to and for', 'communications charts' and 'histories' can
be illustrated by Jenny's experience of living in a residential
care home in Hull.
Jenny has dementia and staff members were finding it difficult
to cope with her behaviours. She wandered around the home day and
night punching people and the walls. Three staff members were
required to supper her when she needed assistance with personal
care, but she constantly hit out at them. When Jenny wasn't walking
about the home, she would remain in her bed all day and refuse
medication. She never communicated verbally and the situation
saddened staff because they felt they were letting her down. She
was barely having her basic human needs met and had no quality of
life.
To address the situation, staff observed Jenny as she walked
around the home. There was very little interaction with her, but
when care staff did speak to Jenny, her mood rose and she would
smile. She also appeared to enjoy rubbing the wall paper and
her clothing, which were textured. It was noticed that Jenny
interacted with music that was playing by clapping and singing
along to it.
Person-centred thinking tools could support the staff to take
what they learnt from these observations to make a real difference
to Jenny's life. Once staff members were able to understand
Jenny's behaviour, they were able to suggest potential activities
around the home that Jenny may like to do. Staff members' ideas
included a tactile/rummage box - to meet Jenny's sensory needs -and
to find out what type of music Jenny enjoyed.
Learning what was important to Jenny and what great support
would look like for her was a way of ensuring she had a better
quality of life. This information was written into a one page
profile that was developed with Jenny, her staff and her
family.
Staff also developed a communication chart to
explain that when something is happening at a certain time that
there are suggestions about what it means and how to support
her. For example, if Jenny shouts when using the lift, it is
because she is anxious about the gap between the floor and the
entrance to the lift, so staff need to reassure her and link her
arms as they get into the lift together.
Staff members used the 'histories' tool to explore Jenny's life,
as this explained some of her behaviours and identified her
interests and hobbies. Jenny just loves Mars Bars and when she
lived in her own home she would buy them in bulk.
Recognising little things like this have resulted in a real
change in Jenny's behaviour and both her family and other agencies
involved with Jenny have commented that she is a new woman.
Jenny appears content and is involved in meaningful activities
around the home such as folding the laundry and walking around the
garden with staff.
Jenny's one page profile has become a key point
of reference for staff and provides important insight. The
person-centred thinking tools have also had an impact on the home's
environment and the staff culture too. Staff members appeared
more motivated and interested in the people they supported and the
changing interaction has given a measurable increase in people's
care and support experiences, making a significant difference to
the lives of the people living in the care home.