How can person-centred approaches help people make decisions
about their healthcare?
The Secretary of State for Health Andrew Lansley has announced
that from 2014, all people will have the right to ask for a
personal health budget. Early findings from the evaluation are
showing improved health outcomes for people. But there is a risk
this important work will be distracted by critics fuelled on a diet
of media stories about severe financial restrictions, cutbacks to
services and "bad" use of public money. We are starting to witness
an increasing climate of "fear" that creative solutions to managing
people's long term health conditions must be continually justified
- and in the worst case scenario, severely restricted.
Some work needs to be done to allay the anxieties of some of our
health colleagues, the media and others that creative,
person-centred solutions that combine both the clinician and
individual's expertise is a good long-term investment that improves
people's lives.
We have been doing some thinking around this with colleagues
from the Department of Health's personal health budget pilot and
amongst our own team. We also hosted a well-attended and earnest
discussion at the Gathering in October about how we take what has
been learnt from social care and apply it to health.
Rita Brewis from In Control said at The Gathering that we can't
simply pick up a system from one working context (social care) and
drop it into another (health). We must instead acknowledge that
there are different legislative frameworks and cultures, as well as
a vast amount of clinical expertise to treasure and cherish.
We of course want to keep hold of best practice and the
research-based advice about best treatment options. But we also
want to bring in an individual's view of what matters most in their
life and shift some of the power and decision making to change the
relationship between the NHS and individuals.
I agree that our goal should be improving the conversations
between clinicians and people (I blogged about this back in
September http://bit.ly/tBThLQ). Our work in this area must lead to
a personal care plan that includes options and advice from the
health service, but also understands the personal impact of the
long term health condition, an individual's preference, the options
they have in their local communities and the real wealth and
capacity they can bring to managing their condition.
One of the factors central to the success of personal health
budgets is the idea of co-production. This is where the person who
is being supported, alongside their family members and friends, are
considered equal partners while developing a package that will help
them manage their long-term health condition.
Person-centred approaches have a vital contribution to make
here. There are a whole range of tools and techniques available
that can help people do this thinking, together with family and
friends, and health practitioners. For many, the essence is a good
conversation that focuses on what is really important to them, and
what they want to change.
We have published a minibook - Person Centred Thinking &
Health (http://bit.ly/vpaHMg) -
which describes how to do this in more detail. For example, the
"Circle of Influence" can help people disentangle the things they
have control over with those they can't, so energy and time can be
redirected to focus on what would help a person feel better and
take more control. The "Helps and Hinders" tool helps a person
think about their condition and build up a picture of what a person
needs more and less of in their lives. The "Support to Confidence"
tool looks at what a person wants to achieve and what support it
would take to have more confidence to self-care.
We must all remember that personalisation is a movement of
change that is about helping people get a better life. Let's take
what we have learnt from social care and use it constructively
within health. And let's continue to get the message out that
a great planning process taps into creativity, integrates what
matters most for an individual's health with clinical best practice
and importantly, innately makes public money work more
effectively.