People with Developmental/Learning Disabilities

This work has been pioneered with people who have developmental/learning disabilities and their families.

Books

 

This Person Centred Thinking minibook and the minibook for people who have autism is availiable from HSAPress.

 

Papers and Articles

Liz and Eleanor's Story is the first in a series that looks at how person centred thinking and planning can be used by family leaders.

We are inspired by how family leaders are using person centred thinking and planning. We are working together to make sure their stories are told, and the first in this series is about Eleanor and her family, told by her Mum, Liz Barraclough.

To view this paper see the downloads box on the left.

 

Person Centred Thinking and Acute Hospital Care - Maureen's story.
This story shows how a residential services team in Wiltshire used the person centred thinking tools, and developed a one page profile for Maureen to help support health colleagues in saving a disabled lady's life.

To view this paper see the downloads box on the left.

Using person centred thinking for people with Epilepsy.

This paper shows how a nursing team in Wiltshire have personalised the care they deliver for people with epilepsy, by using the person centred thinking tool - the doughnut sort to address the confusion around care staff responsibilities.

To view this paper see the downloads box on the left.

The Impact of Person Centered Planning - Final Report.
The main reasons for commissioning the project were that there was, at that time, no robust evidence either of the impact of introducing person centred planning or of those factors which may either facilitate or impede the introduction and effectiveness of person centred planning.

Thus the mains aims of our project were to:

• Evaluate the impact of the introduction of person centred planning on the life experiences of people with learning disabilities or the nature and costs of supports provided to people with learning disabilities.

• Identify personal, contextual and organisational factors which appear to either facilitate or impede the introduction and effectiveness of person centred planning.

To read this report see the downloads box on the left.

 

The Impact of Person Centred Planning.
Person centred planning is now evidenced based practice. Recent research has shown that person centred planning led to significant changes in the areas of social networks; contact with family; contact with friends; community based activities; scheduled day activities; and levels of choice. This article looks at some of the practical implications of the research.

To read this paper see the downloads box on the left.

 

 

The Emergence of Person Centred Planning as Evidence Based Practice.
Recent research has demonstrated that Person Centred Planning leads to positive changes for people. This research shows how Person Centred Planning is associated with benefits in the areas of: community involvement; contact with friends; contact with family; and choice. This paper briefly describes this research and its recommendations. In addition it explores the implications of this for managers and professionals supporting people with learning disabilities.

To read this paper see the downloads box on the left.

 

 

Person Centred Planning and Care Management.
Valuing People (Department of Health, 2001) stresses the important role that Person Centred Planning can play in helping people with learning difficulties take charge of their own lives. The Guidance (Department of Health, 2002) stressed that Person Centred Planning is not a professional activity done to people; instead people themselves and their friends, families or other allies, must lead it. However, professional services still have an enormous role to play in responding in a more person centred way to people with learning difficulties.

To read this paper see the downloads box on the left.

 

Person Centred Planning and Professionals.
This article is third in the series exploring person centred planning. The second article focussed on exploring person centred planning and the challenges and opportunities it may present to professionals. The purpose of this article is to identify a range of person centred planning styles and approaches and highlight different contributions to plans from professionals. We begin with stories about planning, describing the planning styles that are used and the contributions that professionals made to them. Dimensions of potential involvement from professionals are explored in more depth and key implications for practice are identified.

To view this paper see the downloads box on the left.

 

Using Person Centred Planning to Support Day Service Modernisation.
These ideas will be of use to those responsible for day service modernisation and for groups implementing person centred planning frameworks. Indeed it is vital these two initiatives be closely linked. Plans for implementing person centred planning should show how it will influence in the key priority areas, including day supports.

To view this paper see the downloads box on the left.

 

Health Action Planning.
This paper will introduce one page Health Action Plans, a way of supporting people to achieve and maintain good health that places person centred thinking at the centre of the process. It will examine what Government policy said about Health Action Planning and will look at what has been tried since 2001. The learning that has taken place will be considered and the components of a one page Health Action Plan will be discussed. The best people to do Health Action Planning with individuals will be suggested and the advantages and disadvantages of this kind of method will be examined.

To read this paper see the downloads box on the left.

 

Podcasts

Using Gifts to Build Connections and Important To/For Tools.

Julie shares a story about Darlene and her support team.

 

Michelle reviews her planning tool called a PATH.
Michelle belongs to an advocacy group called Power House. Michelle looks at her person centred planning tool called a PATH with Jacqueline.

 

Houston's circle meeting.
Advocate Kelly helps Houston at his circle meeting.

 

Simon is supported to prepare for his annual review.
Simon talks with his citizen advocate preparing for his review.

 

Uri uses technology to have a voice.
Uri is using his Vantage keyboard to have a voice but it can also be used to access and communicate through a computer, mobile phone so he can use the internet , text and use word processing.

 

Jennie's circle of support.
Introducing Jennie's circle of support and how they meet together to think with Jennie about her transition into adult life.

 

Ellen introduces her person centred plan and PATH.

 

Chris develops his PATH.
Chris shares his dream about his future and work with others to create a PATH.

 

Mitchell's booklet: Listen to me.
Mitchell's mum uses the Listen To Me booklet to help her think about her son's life, prepare for his review and start his person centred plan.

 

Ellen talks about college and her job.
Ellen shows you around her college and talks about the importance of a paid job.

 

Support employment: Paul's experience.
Paul has a paid job at McDonalds and he is seen by other staff as a valued team member. We hear about the importance of a job coach and being supported in work.

 

Joseph's micro enterprise.
Joseph has started up his own recycling business as a social enterprise. It's his first job at 17 years of age and his support recognises that they need to learn what's important to Joseph about work through real experiences.

 

Amie introduced the concept of having her own home through shared ownership.
Martin talks about the practical ways this can happen.

 

Matthew and Andrew talk about person centred support.
We hear how good support in everyday life can bring happiness.

 

Amy talks about living in her own home through Key Ring.
Amy talks about how the 'Key Ring' support model helps her live in her own home and not residential care.

 

Damian's relationship circle.
Damian uses his relationship circle to help him think about who is important in his life and how to invite them to his person centred review.

 

Andrew talks about his love of art and how he can use his art to help others.

Resources

Hands Off My Plan!

Hands off My Plan! Is a great new website designed, planned and run by people with learning disabilities. Click here to take a look.

Listen to Me Workbook
This workbook helps the person to get started with their person centred plan.

Listen to Others Workbook

This workbook is a way for other people to contribute to a person's plan.

To view these workbooks click on the title.

 

Examples and Stories

To view these examples or stories, click on the name.

Martin's Essential Lifestyle Plan.
The purpose of this plan tells you, Who the people are in my life, What I enjoy doing everyday, What support I need to do that and How to best support me.

Graham's Essential Lifestyle Plan.
The purpose of this plan is so that any service can respond to Graham's needs.

Jackie's Story.
Jackie lived in a large residential home and expressed the wish to move into a supported living unit. She now has her own tenancy, with full time support.

Dave's Story.
David has been staying in a supported living house with two other men for the last two and a half years.

Steven's Story.
Steven lives at Staley House at present with 22 other people and will be moving into his own flat in the summer of next year.

Eileen's Story.
Eileen is a very gentle person and often she found it difficult to express what she really wanted.

Carmen's Story.

Cameron's Support Plan.
My name is Cameron. I am 18 years old and live with my Mum and Dad in Braintree. I have Aspergers Syndrome.

Julie's Story.

Rose Davis - A parent's perspective.

Peter's Story.

Andrew's Textile one page profile.
Andrew designed and created his textile one page profile with the hope to inspire others to be more creative with their profiles.

Winston's One Page Profile.

Adam's One Page Plan.

Kayley's Plan.

Drew's One Page Profile.

Ben's One Page Profile.

Rachel's Profile.

Michael's One Page Plan.

Dominic's Profile.

Stephen's One Page Profile.

Sheila's One Page Profile.

Keiron's One Page Profile.

Georgie's One Page Profile for Home.

Joanne's One Page Profile.

Katie's One Page Profile, Decision Making Agreement and Working/Not Working.