People with Long Term Health Conditions

People are also using one page profiles and person centred thinking tools to manage long term conditions including cancer.

For example people are using person centred thinking tools along their journey with cancer and chronic health conditions.

If you want to know more about this, please go to our website thinkaboutyourlife.org We are also working with the Personal Health Budget sites in the UK.

Books

The minibook, Person Centred Thinking and Health is availiable from HSA Press.

Papers and Articles

Person centred thinking and long term health conditions - Pat's Story.

Pat has suffered with Raynaud's in her feet since her early thirties, and also has chronic obstructive pulmonary disease and diabetes type 2. This story describes how Pat manages her long term health conditions using various person centred thinking tools and used them to develop her one page profile. Pat is now experiencing personalised, responsive and holistic care that not only treats her illnesses, but also suits her and how she wants to live her life.

To view this paper see the downloads box on the left.

Using Person Centred Thinking in Continuing Health Care.

Continuing health care can be a real challenge for nurses, but a team in Wiltshire are using person centred thinking tools to help care manage patients and meet their health needs in a more personalised way. This case study describes how to use the different tools to address a number of everyday challenges.

To view this paper see the downloads box on the left.

Key elements of personalised care planning in long term conditions and personal health budget by Jo Harvey.

This work was facilitated by Jo Harvey of Helen Sanderson Associates, and began with a small workshop that included representatives from the Department of Health's personal health budgets delivery team and long term conditions team, the Year of Care National team, the Co-creating Health Initiative, Expert Patients Programme, Norfolk Coalition Of Disabled People and a personal budget user with extensive experience in social care support planning.
This is not a DH policy document or a prescriptive guide to personalised care planning, but it is intended to offer a summary of learning from long term conditions, with the aim to provide a useful framework to pilot sites when approaching the planning of personal health budgets.

To read this paper see the downloads box on the left

 

Blogs

Think About Your Life is a website for people to use on their cancer journey. Amanda George is the founder of Think About Your Life. Read Amanda's Think About Your Life blogs on her page.

 

Podcasts

How ThinkAboutYourLife.org can help cancer patients.

Amanda George talks to Helen Sanderson in a series of podcasts.

To view more podcasts from Think About Your Life, go to the Helen Sanderson Channel on YouTube.

 

Examples and Stories

Click on the names below to read these examples of people living with long term health conditions.

The following examples are shared by people that have used Person Centred Thinking tools on their journey with cancer.

Linda's One Page Profile.

Eleanor's One pager.

Amanda.P One Pager.

Amanda.G One Pager.

Katherine's One Pager.

Debbie and Rissa.
Debbie and Rissa are both cancer survivors and in the "new normal" stage of their cancer journey. New normal is about figuring out what is next and how to live your life after treatment is over. They used the person centred thinking tools on the think about your life website to help them with their journey.

Click on the examples below to view.

Rissa's - Dreams, Working/Not Working.

Debbie's - Dreams, Good Day/Bad Day, Hopes & Fears, Matching Support, One Page Profile, Relationship Map and Working/Not Working.

 

Paula's scrapbook health profile.
Paula developed this scrapbook health profile as part of the Women Be Healthy class she attended.  Paula has a son with a developmental disability and is a passionate advocate for disability rights.  Often, she puts others needs ahead of her own. She said doing the health profile helped her determine what she needed to do for her health.

Brooke's Health Profile.

Communication Chart written by someone who suffers with chronic back pain.

Julie's health information for 1st consultation with Personal Trainer.
Julie's One Page Profile for living with Kidney stones.

Kirk has developed and used several person centred thinking tools over the past few years in dealing with severe and chronic pain due to type 2 diabetes. Kirk has shared all of his examples with his health team along his journey with a chronic health condition.

Kirk's One Page Profile.

Kirk's Dreams

Kirk's Good day/Bad day

Kirk's Hopes and Fears

Kirk's Matching Support

Kirk's Working/Not working

Kirk's 4 plus 1

Jane has ulcerative colitis, and used the following tools: good day/bad day, hopes & fears, working/not working and developed her one page profile which helped her to sort what is important to her and how best to support her.

Jane's Good Day/Bad Day.

Jane's Hopes & Fears.

Jane's What's Working/Not Working.

Jane's One Page Profile.

Bill has chronic liver disease, and used the following tools: good day/bad day, hopes & fears, working/not working and developed a summary of what is important to him and the support he needs in his 'Supporting Bill' page.

Supporting Bill.

Bill's Good Day/Bad Day.

Bill's Hopes & Fears.

Bill's What's Working/What's Not Working.

Bill's Signs,Symptoms & Supports.

 

Sue has MS and used a One Page Profile to help her think about what's important and how she wants to be supported at home and at work.

Sue's One Page Profile.

 

Pat has a life limiting illness and has used both a One Page Profile and the Circle of Influence to help her discover what is important and how she will be better supported going forward.

Pat's One Page Profile

Pat's Circle of Influence